thisismydisease.com

October 30, 2008

One! One!! One!!! One!!!!

yeah we we all love one!!!!! how many is one??????

with only one day left of this infamously consumer month (and, hopefully, only one day left to even buy that horrid pink spray tan), i’m supposed to be feeling better. alas, i’m not. in fact, i think i might actually be getting sick. it’s either that or this chemo cocktail really sucks, blows and does everything else negatively imaginable. i’ve had a good yet busy week at work (yeah - a software usability project - finally!) - but even sitting at the desk and not moving around a lot has left me feeling worn out, feverish and more sleepy than usual. maybe i’ll take tomorrow off. it’s not like i don’t have the time, after all.

with only one day left, if i play my cards right i might not have to rush out tomorrow - or go out at all. and maybe i can actually watch those movies i bought a few weeks ago. or catch some of the sesame street episodes.

all in all, one is not a lonely number. it’s the number we love. because it’s the number of tomorrow.

September 7, 2008

Recap

it’s been quite a few tiring, tiresome, annoying days. earlier today i decided not to fight it anyone, so i’ve sequestered myself on the wedge and have been reflecting, refracting and enjoying my time off my feet. nothing is so pressing that i have to walk today - so here i am watching the sun come through the trees and bad programs on the tv. not a bad way to spend some time. i should have done this earlier.

well there’s a lot to recap, but you know what? i might not tackle everything. in fact, i’m not going to tackle everything. i’ll just touch on those things that tick me off or make me smile. the rest can wait or go away. feel free to fill in any blanks your life might be missing because of this. put them in the comments section. i’ll be sure to publish them (but you know the rules, right ;-).

stand up to cancer

(1) keanu reeves: stoned, or just stupid?
(2) cheryl crow: (if i sit here and look somber someone will take me seriously…maybe).
(3) the however many actors/models who recounted stories of actual patients: why? why not just put the folks whose lives they recapped in front of the cameras? oh, yeah, they’re not beautiful - and everone knows cancer must be presented as pretty in order for people to pay attention to it.
(4) melissa etheridge: is that a wig or her real hair? if it’s a wig she got ripped off. (can you say “rat in a blender? if it’s her real hair she needs to start going to a salon with more talented hair engineers. say supercuts or fantastic sams. geez that was painful. (you know there’s something wrong when a woman who’s lost only random handfuls of hair looks better than a multi-millionnaire supported and heraleded by the second largest “disposable income” group in the us. i can see what that hair antic is going to do to the lesbian world. this is me picturing a bunch of overly-monied woman going to their ridiculously priced salons and getting “the melissa”. [shudder] thank the gods she didn’t wear j&j baby lotion pink clothes.)
(5) christina applegate: let’s give a huge shout-out for this woman. she did not get up there with the others, use her name and face and say “i’m christina applegate – and i have the brca gene (not that i even know what this is because i’m too pretty and famous for those things) so i had a double masectomy a few weeks ago. because someone told me to.” nope. she stood up there with the others and said “i am a jewish woman who has the brca gene – so i chose to have a double masectomy a few weeks ago to save my life. oh and my name is christina applegate.” her face said it all. way to go christina!
(6) lance armstrong: capitalist asswipe.
(7) brad garrett love the legs.
(8) divas of rock (or whatever the hell you go by): why?
(9) that mexican woman who stared into the camera the whole time some scientist or doctor guys were making their speal: your plastic surgeon screwed up.

well that’s it for now. there could very well be more later. presently, though, i’m going to learn how commercial tomato sauce is made. doesn’t that sound like fun?

September 2, 2008

Pack Another Bag

notes for cannibal and/or cannibal junior: check.

notes for nurses: check.

grocery list for post-treatment shopping.

cheesy magazine: check.

ikea 2009 catalogue: check. (i need new coverings for my patio door - the fussy sheer curtains just aren’t doing it for me and, frankly, look out of place in an otherwise mid-century modern house.)

instruction book for vidcam that’s been sitting here for one day shy of three weeks while i hid (or should i say continued to hide) in my cave and dealt with mental stress: check. (jezuz christ on a cracker i have literally had no recovery time in a month because of this bullshit.)

extremely extraordinary book: check.

tissues to go with extremely extraordinary book: no-check. they will be pilfered from the nurses’ station.

cereal bars: check.

extra socksies (so i don’t have to walk around on ookey floors in the same socksies that actually touch my feet): small-check. they’re in the laundry basket and just need to be picked out.

hat: check.

dwight or candi: no-check. they’re still vying for position, and i’m still trying to decide which to bring along. (basha, meanwhile, is just sitting here resting up against my laptop and not wanting to do anything but that. [i moved her to a new location for less than 30 minutes, in fact, and she was so miserable she kept trying to squirm back. so i move her back. she’s happy where she is.] zola’s sleeping in the bedroom. shelly’s hiding in the closet and making her escape plans [she wants a new mummy - and i want to make her happy - but i’m having a lot of trouble finding someone that wants her and is willing to live with my rule - which is no sale, ever, no matter how much she ends up being appraised at] and the little ones are having what’s either a party or a brawl in their box - i’m too afraid to look. all the real stuffies are where they like to be and all cozy and happy. except, that is, for the cows and winkie. aw, who they were gifts for over the years, shoved them in my garage in the bottom of a box. they’ll be going for a ride in the washing machine and dryer tomorrow - then picking out where they’d like to hang out for the immediate. )

blankey for keeping warm and snuggling up with: small-check. it’s on the back of my desk chair right now. i’ll grab it on the way out.

port-appropriate shirt for bloodletting and chemo infusing: small-check. i know which shirt i’m going to wear - but have to unearth it from its drawer.

jacket to wear over teeny tiny port-appropriate shirt: small-check. it’s in the closet. i’ll put in on after the shirt.

well, isn’t that a lot of things to be toting around? i’m sure the average person would say “well, duh” - but the average person doesn’t have to spend up to five hours attached to a machine and, for the most part, sequestered to a horribly uncomfortable, vinyl-covered lounge chair. and with no wi-fi. how too old school for words. of course i hope to get in a nice fat nap while there - and if i do this will all be moot.

September 1, 2008

Demarcator Slaughteringly Realism

these are the first few words of one of my most recent comments spam. how interestingly appropriate :-)

August 9, 2008

New Eyebrows - Not Today

i slept through the alarm - so we’ve rescheduled for wednesday afternoon. thankfully jori and crew are really aware that my “new normal” includes some detours and “made plans” are tentative at best.

the most amazingly annoying thing about the oxycodone is it’s totally, totally altered my sleep cycle. every other night i don’t so much sleep as pass out for up to 12 hours at a time - and don’t hear an alarm that’s so loud i can hear it when i’m standing at the end of my driveway. every other night i nap an hour here, ten minutes there - and even the sound of a coyote walking through my backyard minding his own business wakes me. sucky yucky. oh well…just part of the new normal i guess.

maybe my press-on eyeshadow will arrive beforehand. then we can really have some laughs. eyebrow toupees + press on glamour eyes = memories in the making.

August 8, 2008

The Perfect Day

with all the pain and hassle of walking these days, i spend a lot of time just sitting and thinking. with the chemo and the narcotics, though, those thoughts can be rather random or, at least, non-sensical due to their impossibility.

but let’s say there’s no such thing as impossible.

and let’s say random isn’t. so with that in mind…

…the perfect day.

let’s say, in reward for good behaviour, the deities grant me a perfect day: a day in which i can walk without pain (and maybe even wear shoes - but i won’t be greedy), have hands that work and don’t hurt and aren’t ookey looking, taste buds that don’t malfunction and no mouth sores, feel relaxed, look good, have energy to burn - basically be me, but fortified. and let’s say money is no object. and distance means nothing. my perfect day is mine for the taking.

what would that day be?

well i thought about it long and hard - so here’s my day:

the “event” will take place in a modest yet lovely house somewhere on the coast (hornby island maybe, or oregon). the kitchen, though, will be huge and have every possible pot and pan and small appliance and gadget - and a viking stove - and a sub-zero refrigerator/freezer. i’ll be there with b and her two sons, c and her four, n with or without her teen terrors (her choice), and other b (who would also be feeling great). husbands will be outside doing hubby things (smoking some pork shoulders or turkeys, preparing the grill for later, you know, stuff like that) and planing some activities for six boys under the age of 12 to partake in (read “get tired and placid from”). m will drive up in her convertible (with or without kids and grandkids in tow, her choice). pets will be milling about playing with the boys or digging in the sand or snoozing on the porch. and we’ll be cooking copious amounts of food together. no menu. no specific cuisine. just lots of yummies for everyone by everyone. and we’ll cook and snack and cook and snack and field little boys and cook and snack some more. and at some point the guys will don their guy aprons and commence their grilling war. when the sun starts to set, we’ll light torches and candles on the table on the porch - a table large enough to accommodate the herd and serving plates of everything. and we’d eat, drink some very fine wine and home-brewed sodas, eat, talk, laugh, sneek the pets their share, eat, talk and laugh some more. and when the clock turns to midnight it’ll be done and we’ll be back in our respective days-to-day.

the perfect day.

my perfect day.

and if you think it’s odd i’ve thought this out remind me to tell you about the 72 calendar hours (save for sleep time) i spent trying to decide if a web site i found was stellar or stupid.

August 3, 2008

Pleasures…Simple and More So

(please excuse the minimal number of characters that require the shift or caps lock key to be used. the hands aren’t cooperating.

before the SHTF situation yesterday (and, yes, AW, what i’m being put through is a true, real life, more likely to happen than major disaster SHTF situation than those things you and the WOGgie Doggies muse about - think about that and act and plan accordingly - seriously - because if anything ever happens to you your parents will do the same thing to you - they’re all cut from the same cloth, after all) and when i was still feeling happy and content with life, i ran out to fred meyer to pick up some supplies (more milk - i should just get this delivered instead of having to replenish every three days) and some things on the “need to buy” list (which is comprised of those things i either can’t buy online or don’t make sense to buy online). these little trips always amuse me in so many ways because of the “human condition” variables involved. some of the “variables” i encountered during that 2-hour trip were:

(1) a twentysomething guy ripping apart the racks of u-dub branded sports gear - and pulling out tee-shirts and other lightweight items of clothing. by the time he was done he had a good 20 items in his basket;
(2) a thirtysomething mummy with two little ones in tow trying to maneuver the ridiculously sized “play cart” (a shopping cart that looks like a mini-castle, is made of plastic and offers a “play area” that’s as large as the grocery holding area) through the aisles of the clothing section - and bonking it (and, subsequently, the children) into everything - and knocking clothes off of racks and shoes off of shelves and people out of the way . i’m so sure there’s a reason why these stupid play carts exist - and i’m so sure there’s a reason why they have to be half the size of my car - and i’m so sure there’s a reason why children need to be wheeled around stores in them. the poor mum was trying so hard to control the thing and, i think, realising it was a dumb idea to try to push something that outweighed her and was 4′ wide through the teeny tiny aisles.
(3) various store employees trying to unbox and put up stock while also dealing with the “back to school sale” saturday shoppers.

I managed *not* to get my toes run over by other shoppers’ carts - which is a good thing because shopping carts + slippered, neuropathy riddled feet = sure and blinding pain.

and speaking of slippers, not only did i have to buy another pair - but i had to put them on right in the store. (i was completely out of footwear that fit - this is one bad treatment month.) i have a really stylish pair of tan mocs now. guys size 10. they’re smexy. (excuse my while i go clean up the puddle of sarcasm that just fell out of my mouth.

a few months ago i purchased a book written by a performance artist that is based on grocery lists she’s found in random places around la. she created personae to go along with these lists - and, with the help of a photographer, “made human” the shoppers she thought would be associated with the found lists. i wonder what she would do with this:

(1) file folders;
(2) gloves;
(3) slippers;
(4) jewellery box;
(5) pens;
(6) candle torch;
(7) milk;
(8) immune boost.

of the entire list, the only thing with any “fun factor” is the jewellery box i chose. it’s actually a lockable pencil box, black metal with silver metal tab corners, padded with felt and with a few mesh pockets. it works well for the intended purpose and looks cool to boot. i looks like a mini lighting case.

i also ended up with some cheapo workout camis. they’re a size medium and way too big around my 32 (c cup - just so you guys don’t think i’m built like a 10 year old) inch chest - but i can get them over the power port without them getting stuck on it and sending me into a fit of pain and a barrage of swearing. of course the purpose of spandex (which is what they’re made of) is totally lost here, but it works and provides at least a bit of support.

the most exciting purchase is the one i’m wearing now, though. it’s froggy jammie bottoms - sky blue with with antifreeze green happy smilie froggies, black-centered white daisies and black, green and white circles. they make me want to jump up and down and do the pogo. alas, that’s not a option. by jump number three i’d be attached to the ceiling by my overly-strong finger nails and not have any way of getting down.

oh and i ended up with some diabetic socks - little ped type things that are padded enough to cushion my pained feet and have no elastic in them - so no pressure on the swelling. now i’m not sure if these things would be useful at all if it weren’t for the swelling - but right now they’re just right. besides fred meyer was having a “buy two get one free” sale so they were cheap. they’re no where near as cool and fun as the katy sockies (which make me do the happy dance in my mind every time i put them on) - but they’re not meant to be. they serve a single purpose; nothing more. when all is said and done they’ll make nice dust mitts.

when i finally made it over to the dairy aisle yesterday, i ran into a crowd of people in scooters with crutches contained in the back baskets. it was surreal. picture 10+ people in scooters all zoom-zooming through the dairy section totally not caring about the rest of us and making us jump out of their respective ways. ‘a group of visitors from a rehab facility, maybe? or a hidden camera vignette for a tv show? regardless, it was curious. but they really should require the folks that drive those things to have to pass some sort of drivers safety test. or at least prove to them “this is not a toy” by showing them what could happen if they drive one of their 350+ pound (inclusive of body weight) scooters over someone. ‘not, of course, that they’d care, though. it’s been my experience that people who drive those scooters have little respect for lives other than their own. (did i ever tell you about the time when i was living in white rock and one of the seniors in a scooter chased a child down the canned goods aisle while his poor mother stood on and watched with a look of total terror on her face? i managed to grab the kid and scoop him up and out of the way just before crazy scooter senior lady ran him down. she did manage to hit him. his mum was so happy and thanked me repeatedly. crazy scooter senior lady saw me in a different aisle a while later and cursed me out. something about how children shouldn’t be allowed to be in the grocery without being in a cart seat. the boy was about 6 or so, mind you.)

now no trip to the grocery is complete without some bitching out the cashier. yesterday was no exception:

Cashier to woman in front of me: “Hello. How are you? Did you find everything alright?”
Woman in front of me: “No. Not that I ever do when I come here. There’s never anyone here to help. I don’t know why I bother.”

She went on to mutter about the store’s lack of employees for the duration of her check-out.

At this point it should be made know that, if anything, Fred Meyer has too many employees about and there to help. And not even do they answer your questions about products’ locations - they take you to them.

Le sigh.

Human condition. Who people are. What they do. Why they do it. How they do it. Two hours in an early saturday afternoon at Fred Meyer will give you so much insight. And it’s cheaper than a college-level class. Usually.

So with yesterday and the most of today done i am, once more, in the happy zone. i spent time with friends. i spent time enjoying the perfect afternoon (80 degrees and pure blue sky). i spent time in the routine that works for me. and i have new froggie jammie bottoms.

a yummy veggie and fresh mozzarella naan pizza is in the works for dinner (despite the fact naan tastes just horrible to me - if i cover it with enough sauce, veggies and mozzarella i can mask it enough to make it less annoying). a smoothie will be the late night snack. with protein powder and supplements to supplement.

pleasures.

(simple)

and smilie froggy jammie bottoms!!!

(and more so)

July 27, 2008

Stuffies Among Us

Because I don’t have a television in the living room and do, sometimes, need a little “idiot entertainment” I’ve been watching TV shows via Hulu. Because of this I’ve found some very funny shows that I never would have seen had I to rely on an actual television. One of them is called “Back to You” - which is about a newscaster’s (Kelsey Grammer’s) return to his launch city of Pittsburgh, PA and trying to reconnect with his old team. Anyway…

One of the episodes I watched tonight (while typing emails and the like) partially revolved about Anthrocon, an annual convention for people (mostly scary middle-aged men, in fact) who dress up in furry creature suits (???) and, as stated in the episode “get beat up by Trekkies”. Now I admit I find the whole practice of middle-aged men dressing up in animal costumes for “entertainment” to be either a bit too kinky or a bit too worthy of police surveillance for my tastes - but the episode itself is a snot and tear inducing riot. Click here to watch. Pay particular attention to the scene where the “furries” all but assault the investigative reporter.

Either this show is really funny (this episode in particular) - or the chemo and oxycodone have completely fried my braincells.  I’ll let you decide.

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